MarbleRoad
A 501(c)(3) connecting people who have complex illnesses w/resources to help them improve their lives. #raredisease #fqhc
“Rare but strong together” - By February 28, 2013, we are hoping to have 300 people signed up, which could have a potential reach upwards of 300,000 Twitter followers - to tweet on behalf of 30 million Americans with rare diseases. Change the world.
“Rare but strong together” - By February 28, 2013, we are hoping to have 300 people signed up, which could have a potential reach upwards of 300,000 Twitter followers - to tweet on behalf of 30 million Americans with rare diseases. Change the world.
February 28, 2013 marks the sixth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”.
Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! Get involved!
Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! Get involved!
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About MarbleRoad
The mission of MarbleRoad is to connect people who have complex illnesses with the resources they need to help them improve their lives.
A complex illness can be persistent and substantially disabling or life threatening, and requires treatments and services across a variety of domains of care to ensure the best possible outcomes for each unique patient. MarbleRoad focuses on rare or undiagnosed diseases and the needs of community health center patients who seek specialty care services not offered by their primary care providers.
A complex illness can be persistent and substantially disabling or life threatening, and requires treatments and services across a variety of domains of care to ensure the best possible outcomes for each unique patient. MarbleRoad focuses on rare or undiagnosed diseases and the needs of community health center patients who seek specialty care services not offered by their primary care providers.
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